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By Institute of Medicine, Board on Health Care Services, National Cancer Policy Forum, Margie Patlak, Sharon Murphy

The IOM's nationwide melanoma coverage discussion board held a workshop October 5-6, 2009, to check how one can observe the concept that of a 'rapid studying well-being approach' to the matter of melanoma. This record summarizes the workshop.

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Additional info for A Foundation for Evidence-Driven Practice: A Rapid Learning System for Cancer Care: Workshop Summary

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Researchers will then use these data to build better models to predict risk and outcomes for low- and high-risk breast cancer patients that can be used for tailored screening and prevention strategies. In another project, caBIG is partnering with the Love/Avon Army of Women to build the first online cohort of 1 million women willing to participate in clinical trials. 0 technology, the caBIG tools and infrastructure will facilitate the creation of this online breast cancer cohort that will match clinical researchers with individuals wanting to participate in clinical trials.

Collecting data on race and ethnicity can also reveal treatment differences. “Knowing race and ethnicity of patients is part of being able to do accurate, prospective, observational research. I think that this type of capability is going to change how we are going to do things,” Dr. Wallace said. KP is also beginning to look at population health and has found that its patients in southern California were more likely to survive breast, colon, melanoma, and lung cancer at all stages than indicated in SEER data collected from patients from the same geographic area.

The CDC is also actively working on standardized electronic data exchange. Ms. Sandy Thames, a public health adviser with the agency, reported that CDC is working on a model electronic reporting project for cancer surveillance, linked to EHRs and harmonized with national health IT efforts at standardization and interoperability. She said CDC is also working on building a concept for how federal agencies, public health systems, providers, and consumers could be connected in a shared environment with a national public computer grid.

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